Eyes are More than Cameras The Rhetorical Infrastructure of Vision Care and Its Impact on Patients with Eye Movement Disorders
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Abstract
This paper explores how an intellectual account that describes eyes as cameras shapes clinical practices of measurement and correction in vision care. For patients with eye movement disorders (EMDs), which are complex, not easily treated, and often incurable, the acuity-centric system of vision care often reduces their experiences to standardized assessments that fail to address the full scope of their needs. Bringing together rhetoric of health and medicine (RHM) research, quality-of-life studies, patient testimonies, and qualitative responses from our survey of people with EMDs, we examined patients’ frustrations within a system that prioritizes acuity correction over a nuanced understanding of their complex conditions. We used the framework of the quest narrative as derived from the domains of theater and improv to highlight the multiplicity of ways that people with non-normative bodies navigate a normative infrastructure over time. This paper contributes to RHM scholarship in two primary ways: 1) by operationalizing critical disability studies critiques of biomedical normativity within care contexts and 2) detailing the care-related experiences of people defined as having rare disabilities or diseases.
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