Embodying Expertise The Influence of Online Information in Health Decision Making

Main Article Content

Shanna Cameron

Abstract

This article engages with rhetoric of health and medicine (RHM) scholarship on embodiment and expertise in online health communication to demonstrate how rhetorical tactics help patients make embodied health decisions. This study analyzes 320 online postings, 84 published narratives, 30 surveys and written reflections, and 10 interviews in an online health community for Asherman syndrome (AS), a rare illness that develops after reproductive surgery. The findings of this study highlight how patients incorporate online information into their decision-making practices by accumulating embodied knowledge, tailoring questions, insisting on specific treatments, and switching healthcare providers. This article argues that patients’ rhetorical tactics, when shared and accumulated over time, can transform treatment outcomes.

Article Details

Section
Research Articles

References

Alexander, Jamal-Jared, & Edenfield, Avery. (2021). Health and wellness as resistance: Tactical folk medicine. Technical Communication Quarterly, 30(3), 241–256.

Arduser, Lora. (2011). Warp and weft: Weaving the discussion threads of an online community. Journal of Technical Writing and Communication, 41(1), 5–31.

Arduser, Lora. (2017). Living chronic: Agency and expertise in the rhetoric of diabetes. Ohio

State University Press.

Bakke, Abigail. (2019). Trust-building in a patient forum: The interplay of professional and personal expertise. Journal of Technical Writing and Communication, 49(2), 156–182.

Booher, Amanda K., & Jung, Julie. (2018). Feminist rhetorical science studies: Human bodies, posthumanist worlds. Southern Illinois University Press.

Cameron, S. (2023). Agentive assemblages in online patient spaces. Technical Communication Quarterly, 32(4), 347–363.

Campeau, Kari. (2022). Bridging experience and expertise: A case study of COVID-19 vaccine trial participation and social media vaccine communication. Rhetoric of Health & Medicine, 5(4), 403–432.

Fox, Susannah. (2008, August 26). The engaged e-patient population. Pew Internet and American Life Project. https://www.pewresearch.org/internet/2008/08/26/the-engaged-e-patient-population/

Fox, Susannah. (2013, January 15). Health online 2013. Pew Internet and American Life Project.

https://www.pewresearch.org/internet/2013/01/15/health-online-2013/

Frost, Erin A., & Eble, Michelle F. (2020). Interrogating gendered pathologies. University Press of Colorado.

Graham, S. Scott. (2015). The politics of pain medicine: A rhetorical-ontological inquiry. University of Chicago Press.

Hensley Owens, Kim. (2015). Writing childbirth: Women’s rhetorical agency in labor and online. Southern Illinois University Press.

Holladay, Drew. (2017). Classified conversations: Psychiatry and tactical technical communication in online spaces. Technical Communication Quarterly, 26(1) 8–24.

Hooker, Angelo B., Lemmers, Marike, Thurkow, Andreas L., Heymans, Martijn W., Opmeer, Brent C., Brölmann, Hans A. M., Mol, Ben W., & Huirne, Judith A. F. (2014). Systematic review and meta-analysis of intrauterine adhesions after miscarriage: Prevalence, risk factors, and long-term repro-ductive outcome. Human Reproduction Update, 20(2), 262–278.

Hooker, Tristin Brynn. (2022). Tweeting zebras: Social networking and relation in rare disease advocacy. Rhetoric of Health & Medicine, 5(1), 93–122.

International Asherman’s Association. (n.d.). Our stories. https://web.archive.org/web/20241009213702/https://www.ashermans.org/about-us/our-stories/english/

International Asherman’s Association. (2017). The silent syndrome: Women and doctors reveal how routine medical procedures cause infertility, miscarriages, and Asherman syndrome. CreateSpace.

Jarvis, Caitlyn. (2021). Invitational rhetoric in epistemic practice: Invitational knowledge in infertility support groups. Rhetoric of Health & Medicine, 4(1), 1–32.

Jewell, Nicholas P. (2016). Natural history of diseases: Statistical designs and issues. Clinical Pharmacol-ogy & Therapeutics 100(4), 353–361.

Johnson, Bethany L., Quinlan, Margaret M., & Pope, Nathan. (2020). “Sticky baby dust and emoji”: Social support on Instagram during in vitro fertilization. Rhetoric of Health & Medicine, 3(3), 320–349.

Jones, W. E. (1964). Traumatic intrauterine adhesions: A report of 8 cases with an emphasis on therapy. American Journal of Obstetrics and Gynecology, 89, 304–313.

Kessler, Molly M. (2020). The ostomy multiple: Toward a theory of rhetorical enactments. Rhetoric of Health & Medicine, 3(3), 293–319.

Kimball, Miles A. (2006). Cars, culture, and tactical technical communication. Technical Communication Quarterly, 15(1), 67–86.

Kimball, Miles A. (2017). Tactical technical communication. Technical Communication Quarterly, 26(1), 1–7.

Knoblauch, A. Abby, & Moeller, Marie E. (2022). Bodies of knowledge: Embodied rhetorics in theory and practice. Utah State University Press.

March, C. M. (2005). Gestational outcome of 875 pregnancies following hysteroscopic lysis of intrauterine adhesions. Presentation at 60th annual ASRHP clinical meeting in San Diego, CA.

March, Charles M. (2011). Management of Asherman’s syndrome. Reproductive Biomedicine Online, 23, 63–76.

McKee, H., & Porter, J. (2010). Rhetorica online: Feminist research practices in cyberspace. In E. Schell & K. J. Rawson (Eds.), Rhetorica in Motion: Feminist Rhetorical Methods and Methodologies (pp. 152–170). Pittsburgh, PA: University of Pittsburgh Press.

McKinley, Marissa. (2019). Analyzing PCOS discourses: Strategies for unpacking chronic illness and taking action. In Jamie White–Farnham, Bryna Siegel Finer, & Cathryn Molloy (Eds.), Women’s health advocacy: Rhetorical ingenuity for the 21st century (pp.34–44). Routledge.

Mol, Annemarie. (2002). The body multiple: Ontology in medical practice. Duke University Press.

Moore, K. R. & Richards, D. P. (2018). Posthuman praxis in technical communication. New York, NY: Routledge.

National Institutes of Health. (n.d.). An introduction to health literacy. https://www.nnlm.gov/guides/intro-health-literacy

Pender, Kelly. (2018). Being at genetic risk: Toward a rhetoric of care. Penn State University Press.

Schoettler, Megan. (2023). Make your feed work for you: Tactics of feminist affective resistance on social media. Computers and Composition, 67, 10672.

Segal, Judy Z. (2005). Health and the rhetoric of medicine. Southern Illinois University Press.

Segal, Judy Z. (2009). Internet health and the 21st-century patient: A rhetorical view. Written Communica-tion, 26(4), 351–369.

Seidel, Elizabeth, Cortes, Tara, & Chong, Cynthia. (2023). Digital health literacy. The Agency for Healthcare Research and Quality: An Official Website of the Department of Health and Human Services. https://psnet.ahrq.gov/primer/digital-health-literacy

Tung, Elizabeth L., Press, Valerie G., & Peek, Monica E. (2024). Digital health readiness and health equity. JAMA Network Open, 7(9): e2432733. doi:10.1001/jamanetworkopen.2024.32733

Vancaille, Thierry, Chan, Karen, Liu, Jinzhu, Deans, Rebecca, & Howard, Elizabeth. (2020). Asherman syndrome: Audit of a single-operator cohort of 423 cases. The Australian and New Zealand Jour-nal of Obstetrics and Gynaecology, 60, 574–578.

Wang, Yuxi, McKee, Martin, Torbica, Aleksandra, & Stuckler, David. (2019). Systemic literature review on the spread of health-related misinformation on social media. Social Science & Medicine, 240, https://doi.org/10.1016/j.socscimed.2019.112552

Yam, Shui-yin Sharon. (2020). Visualizing birth stories from the margin: Toward a reproductive justice model of rhetorical analysis. Rhetoric Society Quarterly, 50(1), 19–34.