“Dismantle or Step Aside” The Road to HIV Racial Justice Now! and The Push for Racial Liberation in the Domestic HIV Movement
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Abstract
While there have been tremendous advancements in HIV prevention, treatment, research, and care, vast health disparities still exist across race and ethnicity, as Black and Latinx people continue to have disproportionate rates of new HIV cases. Despite this fact, funding toward and implementation of policies that meet the needs of most impacted communities are virtually non-existent. Moreover, meaningful and impactful discussions about HIV have always required analyzing interlocking systems of privilege and oppression. Thus, in 2017, a group of scholars and activists of color developed HIV Racial Justice Now!, a nationwide grassroots coalition dedicated to advancing a racially just framework for the domestic HIV epidemic. In addition to developing The Declaration, a framework that can be used to push for racial liberation, HRJN disrupts traditional notions of HIV rhetoric, racial justice, and public memory by decentering whiteness in the domestic HIV movement.
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References
Amirkhanian, Yuri A. . (2014). Social networks, sexual networks, and HIV risk in men who have sex with men. Current HIV/AIDS Reports, 11(1), 81–92. https://doi.org/10.1007/s11904-013-0194-4
Azar, Alex (2019, February 5). Ending the HIV epidemic: A plan for America. HIV.gov. https://www.hiv.gov/blog/ending-hiv-epidemic-plan-america
Barkun, Michael (2017). President Trump and the “fringe.” Terrorism and Political Violence, 29(3), 437–443. https://doi.org/10.1080/09546553.2017.1313649
Bernard, Edwin ,McClelland, Alexander, Cardell, Barb, Chung, Cecilia, Castro-Bojorquez, Marco, French, Martin., Hursey, Devin, Khanna, Naina, Minalga, Mx Brian, Spieldenner, Andrew A., & Strub, Sean. (2020). We are people, not clusters! The American Journal of Bioethics, 20(10), 1–4. https://doi.org/10.1080/15265161.2020.1809550
Black, Jason Edward Black., & Harrison, Vernon Ray (2019). On contemporary contours of public memory. Rhetoric and Public Affairs, 22(1), 129–148. https://doi.org/10.14321/rhetpublaffa.22.1.0129
Bowleg, Lisa, Malekzadeh, Arianne. N., Mbaba, Mary, & Boone, Cheriko A. (2022). Ending the HIV epidemic for all, not just some: Structural racism as a fundamental but overlooked social-structural determinant of the US HIV epidemic. Current Opinion in HIV and AIDS, 17(2), 40–45. https://doi.org/10.1097/coh.0000000000000724
Brier, Jennifer (2009). Infectious ideas: U.S. political responses to the Aids crisis. The University of North Carolina Press.
Brouwer, Daniel C.,, & Morris III, Charles E. (2021). Decentering whiteness in AIDS memory: Indigent rhetorical criticism and the dead of Hart Island. Quarterly Journal of Speech, 107(2), 160–184. https://doi.org/10.1080/00335630.2021.1905868
brown, Adrienne maree. (2017). Emergent strategy: Shaping change, changing worlds. AK Press.
Catlin, Jonathon (2021). When does an epidemic become a ‘crisis’? Analogies between COVID-19 and HIV/AIDS in American Public Memory. Memory Studies, 14(6), 1445–1474. https://doi.org/10.1177/17506980211054355
Centers For Disease Control and Prevention. (2017, January 31). Health disparities. https://www.cdc.gov/aging/disparities/index.htm
Centers For Disease Control and Prevention. (2022, January 11). HIV and African American gay and bisexual men. Centers for Disease Control and Prevention. https://www.cdc.gov/hiv/group/msm/bmsm.html
Centers for Disease Control and Prevention. (2019, November 13). HIV risk behaviors. https://www.cdc.gov/hiv/risk/estimates/riskbehaviors.html
Centers for Disease Control and Prevention. (2021, October 1). Basic statistics. https://www.cdc.gov/hiv/basics/statistics.html
Chávez, Karma. R. (2012). ACT UP, Haitian migrants, and alternative memories of HIV/AIDS. Quarterly Journal of Speech, 98(1), 63–68. https://doi.org/10.1080/00335630.2011.638659
Clerkin, Elise M., Newcomb, Michael E., & Mustanski, Brian. (2010). Unpacking the racial disparity in HIV rates: The effect of race on risky sexual behavior among black young men who have sex with men (YMSM). Journal of Behavioral Medicine, 34(4), 237–243. https://doi.org/10.1007/s10865-010-9306-4
Conference on Retrovirus and Opportunistic Infections. (2016, February 23). 2016 CROI press release: Lifetime HIV risk. Centers for Disease Control and Prevention. https://www.cdc.gov/nchhstp/newsroom/2016/croi-press-release-risk.html
Declaration of Liberation: Building a Racially Just and Strategic Domestic HIV Movement . (2017, November 9). HIV Racial Justice Now! https://hivracialjustice.wixsite.com/framework.
Department of Health and Human Services. (2022, January 26). Impact on racial and ethnic minorities. HIV.gov. https://www.hiv.gov/hiv-basics/overview/data-and-trends/impact-on-racial-and-ethnic-minorities
Ferguson, Roderick. A. (2018). One-dimensional queer. Polity.
Funders Concerned About AIDS. (2018). FCAA data spotlight: HIV philanthropy for Black, Indigenous and people of color communities. Washington, DC: Funders Concerned About AIDS.
Goffman, Erving. (1974). Stigma: Notes on the management of spoiled identity. Penguin.
Gould, Deborah B. (2012). Act up, racism, and the question of how to use history. Quarterly Journal of Speech, 98(1), 54–62. https://doi.org/10.1080/00335630.2011.638661
Harper, Gary. W., Tyler, April Timmons, Bruce, Douglas., Graham, Louis., & Wade, Ryan M. (2016). Drugs, sex, and condoms: Identification and interpretation of race-specific cultural messages influencing black gay and bisexual young men living with HIV. American Journal of Community Psychology, 58(3-4), 463–476. https://doi.org/10.1002/ajcp.12109
Harris, Tina. M., & Steiner, Rebecca. (2018). Beyond the veil: A critique of white Christian rhetoric and racism in the age of Trump. The Journal of Communication and Religion, 41(1), 33–45. https://www.academia.edu/39637894/Communication_Religion_and_Race_in_America_50_Years_Later_and_Where_Do_We_Go_from_Here?auto=citations&from=cover_page.
Hastings, Colin (2022). Writing for digital news about HIV criminalization in Canada. Canadian Review of Sociology. https://doi.org/10.1111/cars.12374
Hernández-Romieu, Alfonso. C., Sullivan, Patrick. S., Rothenberg, Richard., Grey, Jeremy., Luisi, Nicole., Kelley, Colleen. F., & Rosenberg, Eli. S. (2015). Heterogeneity of HIV prevalence among the sexual networks of black and white men who have sex with men in Atlanta. Sexually Transmitted Diseases, 42(9), 505–512. https://doi.org/10.1097/olq.0000000000000332
Hoppe, Trevor (2018). Punishing disease: HIV and the criminalization of sickness. University of California Press.
Iott, Bradley E., Loveluck, Jimena, Benton, Akilah., Golson, Leon., Kahle, Erin., Lam, Jason., Bauermeister, Jose. A., & Veinot, Tiffany. C. (2022). The impact of stigma on HIV testing decisions for gay, bisexual, queer and other men who have sex with men: A qualitative study. BMC Public Health, 22(1). https://doi.org/10.1186/s12889-022-12761-5
Kaiser Family Foundation. (2019, October 1). Medicaid and HIV. KFF. https://www.kff.org/hivaids/fact-sheet/medicaid-and-hiv/
Keränen, Lisa. (2014). Public engagements with health and medicine. Journal of Medical Humanities, 35(2), 103–109. https://doi.org/10.1007/s10912-014-9275-7
Louisiana Department of Health. (2020). (rep.). Get Loud Louisiana: Ending The Epidemic 2021-2025. https://louisianahealthhub.org/get-loud-statewide/.
Lynn, Vickie (2022, January 12). Why language matters: Facing HIV stigma in our own words. The Well Project. https://www.thewellproject.org/hiv-information/why-language-matters-facing-hiv-stigma-our-own-words
Malkowski, Jennier., & Melonçon, Lisa. (2019). The rhetoric of public health for RHM scholarship and beyond. Rhetoric of Health & Medicine, 2(2), iii-xiii. https://doi.org/10.5744/rhm.2019.1010
McCann, Bryan J., Mack, Ashley. N. & Self, Rico. (2020) Communication's quest for whiteness: the racial politics of disciplinary legitimacy, Communication and Critical/Cultural Studies, 17(2), 243-252, DOI: 10.1080/14791420.2020.1770822
Mcneil, Donald G. (2019, March 12). Trump's proposed budget undermines his H.I.V. plan, experts say. New York Times. https://www.nytimes.com/2019/03/12/health/trump-hiv-aids-costs.html
Millett, Gregorio A., Peterson, John L., Flores, Stephen A., Hart, Trevor A., Jeffries, William L., Wilson, Patrick A., Rourke, Sean. B., Heilig, Charles M., Elford, Jonathan, Fenton, Kevin A., & Remis, Robert S. (2012). Comparisons of disparities and risks of HIV infection in black and other men who have sex with men in Canada, UK, and USA: A meta-analysis. The Lancet, 380(9839), 341–348. https://doi.org/10.1016/s0140-6736(12)60899-x
Murray, Milena (2021, June 7). The importance of people-first language in the HIV community. AJMC. https://www.ajmc.com/view/contributor-the-importance-of-people-first-language-in-the-hiv-community
Norton, Michael I., & Sommers, Samuel R. (2011). Whites see racism as a zero-sum game that they are now losing. Perspectives on Psychological Science, 6(3), 215–218. https://doi.org/10.1177/1745691611406922
Pear, Robert (2019, February 12). Trump pledged to end H.I.V. but his policies veer the other way. New York Times. https://www.nytimes.com/2019/02/12/us/politics/trump-hiv-plan.html
Persson, Asha (2014). Significant ambivalence: Perspectives of Australian HIV service providers on universal treatment-as-prevention (TASP) for serodiscordant couples. Critical Public Health, 25(2), 153–164. https://doi.org/10.1080/09581596.2014.886005
RISE Proud: Combating HIV Among Black Gay and Bisexual Men (Rep.). (2013, June 5). National Minority AIDS Council. http://www.nmac.org/wp-content/uploads/2013/05/Action-Plan_6.5.13.pdf
Russo, Vito (1987). The celluloid closet: Homosexuality in the movies. Harper & Row.
Shahani, Nishant (2016). How to survive the whitewashing of AIDS: Global pasts, transnational futures. QED: A Journal in GLBTQ Worldmaking, 3(1), 1–33. https://doi.org/10.14321/qed.3.1.0001
Sontag, Susan (1990). Illness as metaphor and aids and its metaphors. Anchor Books.
Spieldenner, Aandrew (2016). Prep whores and HIV prevention: The queer communication of HIV pre-exposure prophylaxis (prep). Journal of Homosexuality, 63(12), 1685–1697. https://doi.org/10.1080/00918369.2016.1158012
Spieldenner, Andrew R., Sprague, Laurel, Hampton, Ari, Peavy, Dwight, Bagchi, Ann, Cardell, Barbara, Johnson, Vanessa, Brown, Gina, & Brewer, Russel (2019). From consumer to community-based researcher: Lessons from the PLHIV Stigma Index, in P. Kellett (Ed.), Narrating patienthood: Engaging diverse voices on health, communication, and the patient
Spieldenner, Andrew. (2018, February 2). Why does HIV need a racial justice framework? POZ. https://www.poz.com/blog/hiv-need-racial-justice-framework
Spieldenner, Andrew, French, Martin, Ray, V, Minalga, Brian., Sardina, Cristine, Suttle, Robert, Castro-Bojorquez, Marco, Lewis, Octavia, & Sprague, Laurel. (2022). The meaningful involvement of people with HIV/AIDS (MIPA): The participatory praxis approach to community engagement on HIV surveillance. Journal of Community Engagement and Scholarship, 14(2). https://digitalcommons.northgeorgia.edu/jces/vol14/iss2/1
Sullivan, Patrick S., Rosenberg, Eli S., Sanchez, Travis H., Kelley, Colleen F., Luisi, Nicole, Cooper, Hannah L., Diclemente, Ralph J., Wingood, Gina. M., Frew, Paula M., Salazar, Laura F., del Rio, Carlos., Mulligan, Mark. J., & Peterson, John . L. (2015). Explaining racial disparities in HIV incidence in black and white men who have sex with men in Atlanta, GA: A prospective observational cohort study. Annals of Epidemiology, 25(6), 445–454. https://doi.org/10.1016/j.annepidem.2015.03.006
Treichler, Paula A. (1999). How to have theory in an epidemic: Cultural chronicles of Aids. Duke University Press.
U.S. Department of Health & Human Services. (2021, June 2). U.S. statistics on HIV/AIDS. HIV.gov. https://www.hiv.gov/hiv-basics/overview/data-and-trends/statistics
Welhausen, Candice A., (2020). RHM, interdisciplinarity, and an international public health conference. Rhetoric of Health & Medicine, 4(1), 75–91. https://doi.org/10.5744/rhm.2021.1004.