Methodologies and Inequities Participatory and Narrative Approaches to Research with Marginalized Communities
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Abstract
In this commentary, we reflect on a study investigating how young people living with HIV navigated the COVID-19 pandemic and offer concrete methodological approaches to studying health inequity. We describe how participatory and narrative-based methods helped us develop five specific study protocols that reflected our commitments to equity in research: revising questions to account for local conditions of risk; intervening in histories of extractive research practices leveraged against communities at the margins; phrasing demographic questions to account for the complexity of identity; incorporating consent iteratively across the study; and offering incentives that were consistent with participants’ expertise of their own lived experiences. We use these reflections to further ongoing conversations about integrating equity into rhetorically inflected health research.
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